Facing Your Fears

This past weekend I went on a short camping trip with my husband in Quebec at the Grands Jardins National Park. Aaron was going to join a two week french immersion program through Western University. We were just going to have a relaxing few days up in the mountains before he started school, reading books, hiking and sitting by the campfire. However, we decided to sign up for the Via Ferrata. We chose the 3.5 hour “beginner” course since heights are one of my fears. But I was eager to face that fear!

For those of you that know me, know that I have been dealing with some health issues over the last 15 years. For those that don’t know me, that’s a story for another time if I haven’t written about it already. However, this summer after getting help from my family doctor, rheumatologist and naturopathic doctor, I feel better than I’ve felt in a very long time! There were some days where I had a very difficult time walking and moving my arms. So to do something like rock climbing, was a pretty far reach. Physically and mentally!

We really thought it might be 30 maybe 40 feet high, maybe a bit more. It was a course that kids could handle! Boy, were we wrong!! We were up at about 720 meters at one point. I have to say, I handled it way better than I thought! After about 5 mins. I said to Aaron that I thought we were in the wrong group. I mean we must have been! He half jokingly, half serious asked our guide. Nope. We were assured we were on the right course. The intermediate group did about 1/2 – 3/4 of the course we were on and then continued up higher. Regardless, we were on that rock and I had no where to go but up!

There were moments of total fear, some excitement, so much concentration that I didn’t realize how far I had gotten until a real tricky spot came up, negative self talk about what would happen to our kids if we both fell and died (but that was short lived – I managed to shove those thoughts aside pretty quickly), along with lots of smiles, laughs and wtf did we get ourselves into faces! Thank god Aaron was with me to encourage me. Between him and our guide, I had this! It was one of the most frightening, yet rewarding experiences of all time! The view was spectacular and I was able to be very proud of what I had just accomplished. It’s pretty hard to put it in to words.

I know that we encourage our kids to face their fears all of the time. But when do we ever show them that we can do it too? I don’t know how many times we’ve worked with Gracie over her fear of spiders, or friendships, or math, etc. etc. All these years, pushing her, encouraging her, yet I hadn’t faced a single fear of my own. I didn’t realize the thought process and different ways we handle ourselves when under pressure. But I can now say, it’s not as easy as it seems. The great thing is, it can be done and the gratification you get when facing something terrifying is pretty powerful. It doesn’t matter how they face what scares them the most, as long as they have our support, guidance and encouragement. Take it step by step, at the pace they feel comfortable with. It may be a very long process. But it is so worth it at the end!

If your child has some serious worries/fears, give this book a try! It has some great strategies! It uses Cognitive Behavioural Therapy (CBT) for kids and is very visual and interactive.

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Honesty… it’s not just my story. It’s theirs too.

It’s been a very long time since I published anything on here! Almost a year! I’ve been struggling a bit with what to write for so long because I don’t want to write anything but the truth. The good, the bad and the ugly! I feel that writing about our life story is the best way to help others understand that we are all in this together. If I can’t be honest, then what is the point? Social media is affecting so many people in wonderful ways but can also be so unrealistic! When I was dealing with health issues and feeling like crap, I could not even look at Reese Witherspoon’s IG posts! Her perfect outfits and perfect hair in her clean house with her happy kids and well behaved dogs! You know what I’m talking about right?? My house seemed to be in complete disarray and I didn’t have the strength to even do my hair for work let alone cook a delicious healthy meal for the family AFTER work! Are you kidding me?!? Seeing her posts plus the many others (even from real life people I know) was too depressing! The guilt I would feel for not being like that! It’s crazy, I know! Don’t get me wrong, I love Reese and I’m sure she’s had her fill of struggles too. But the perfect persona shown on social media was just too much for me to handle at the time! I also see many moms on social media who post videos of their toddlers and lives, and I LOVE their honesty! That’s what keeps me coming back to read their blogs or watch their videos. The problem for me is that my kids are teenagers and have a more “shy” personality. Mine get embarrassed if I show people their baby pictures let alone post it for the world to see! I’ve wanted to post about many things over the past year. Where Gracie was and where she is at today. The struggles that all 3 of my teenagers have faced over their high school years. The problem is, it’s not just my story to tell. It belongs to them too. I’ve talked to Gracie about how telling her story can help others, especially since she’s come so far. She shouldn’t be embarrassed by the things she’s done in her past, the choices she’s made or the struggles she’s faced because that has made her who she is today. And to us, she’s pretty incredible! She has agreed to share some things now and I will post them (with her permission of course) as often as I can. But for now, what are some things you would like to know? What are your biggest challenges and how can we help? Shoot me an email or comment below and we will do our best! I just wanted to let you know that we’re back. Hopefully with some inspiring info. that can help you and your family live a well balanced life!! Or at least somewhat balanced!

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Friendships

Well this is a tough one! In all honesty, I think that certain skills can be taught on how to be a good friend, how to have conversations with people, play skills, how to connect with non-verbal children who seem to prefer to play independently etc. etc. But what it really comes down to, in order for all of those teachings to work, is for your child to find someone who accepts them for who they are.

GG has always connected more with adults than children her own age. The adults seem to enjoy her enthusiasm and even more, her honesty. Not all teenagers can handle that kind of honesty.  I would say her biggest struggle right now is not understanding the conversations that her peers have. Plus developmentally, they are at a different stage than she is. She is wanting to go to parties or hang out with friends on a Friday night yet still loves treehouse tv. She listens to the typical rap music her peers listen to and then mixed in with those playlists she has the wheels on the bus, etc.  She can’t be unsupervised so this makes things very difficult! She can be easily manipulated to do something because she wants to fit in so bad. She’s been in tears over this.

I know some of you have children who continue to struggle with peers and developing friendships. My advice to you is to keep working through them as they come along, but also throw in some teaching moments whenever possible.

*Disclaimer! LOL  I haven’t researched this in a long time! We learn as we go. So most of my suggested book list is probably outdated! However, they still worked for us so that is why I’m sharing them. If and when I come across some new material, I’ll let you know! 

Here are a list of books and programs we have used and love:

The Asperkid’s (Secret) Book of Social Rules: The Handbook of Not-So-Obvious Social Guidelines for Tweens and Teens with Asperger Syndrome written by Jennifer O’Toole. This book is written for your child to read themselves. They have to be able to comprehend it and it is a bit on the challenging side. It was too complicated for G to read so I read it myself and explained some of it to her in a way she would understand. It’s a great way to really understand where our kids are coming from and how they see the world. It was written by a woman with Aspergers. Who better to learn from than from someone who has lived with this struggle!

More Than Words: Helping Parents Promote Communication and Social Skills by Fern Sussman. This book was given to us at a workshop for parents. It was suggested for parents whose children were non-verbal. It was a good program, especially to meet and connect with other parents. Ask your speech pathologist for a course near you. (If they still run them)!

I am a huge fan of the Pivotal Response Treatment manuals from the Koegel Autism Consultants. They have books and manuals on their website that I highly recommend.

Pivotal Response Treatment® is a highly acclaimed research-based intervention for individuals with Autism Spectrum Disorders (ASD). PRT® is a naturalistic intervention model derived from Applied Behavior Analysis (ABA) *

Space Travellers: An Interactive Program for Developing Social Understanding, Social Competence and Social Skills for Students with Asperger Syndrome, Autism and  Other Cognitive Challenges: Space Guide Manual. This is a program that can be done in school with their classmates in a fun space theme.

The Circles Program teaches social boundaries. Your school or school board should have a copy of this program. Ask your Special Education Resource Teacher (SERT) if they have one available and if they can incorporate it into their school program.

The American Girls Care and Keeping of You Books are great for teaching hygiene and body changes, etc. Let’s face it, hygiene is a big factor in whether or not our kids make and keep friendships! The Feelings Book is also another great one to check out!

The Greenspan Floortime Approach website has a free online course and resources for parents. It’s been years since we incorporated this method in our home or with some of the children I’ve worked with and what I remember is putting myself in “their world”. If a child was spinning in a circle, I would join them. If they were flapping their hands and making noises, I would join them. If they were lining cars up, you guessed it, I joined them. This allowed the child to see that I was interested in what they were doing. I was amazed at the eye contact I received and the smiles because I was joining their play instead of trying to direct their play. We connected which eventually led to trust. I could then add to their play. It was incredible! And very rewarding.

Throughout the years, we have met some pretty incredible people and families. Especially in our autism community. If you ever get the chance to go to any social groups through Autism Ontario or other programs, take the leap and go! Even if you have hesitations. I promise you it will be worth it! The parents get it! They will support you and offer assistance. You won’t get the stares (even if it is just out of curiosity and not judgement), and you and your children will connect with other parents and siblings and friends that can possibly last a lifetime!

We have gone on some overnight trips through Autism Ontario and they have been some of my favourite moments that provided some of my favourite memories. If you are in the Georgian Bay area, check out the Kinark Outdoor Centre. Look under Autism and see their family respite weekends (definitely one of my favourites) and family camp programs. We attended the Family Respite Weekend and it was incredible! Hubby and I got about 2-3 hours a day to ourselves to do what we wanted while G was with a one on one worker and her siblings were off with a group doing activities with other siblings. It was amazing!!

Again, this is just a small list of books/sites and I could go on and on but each child is different and only you will know what works best for them. This will hopefully get you started! If you need more specific strategies, send me an email. We’ll help each other out!

 

*Koegel Autism: Pivotal Response Treatment (PRT) Training and Services.

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Never Ever Give Up!

Monday night I went to a Celebration of Life for a very good friend of mine. She was 53. Cancer. I know that when people move on, we always hear the great qualities and inspiring stories about them.  But Christine was a true soul in all of her living days! She was honest. Kind. Hilarious. Talented. Positive. Loving. Inspiring. And so much more.

Her celebration of life was actually a concert. This was something I have never experienced before and probably won’t again. Her comedian brother opened up with thick glasses and teeth hanging out of his mouth. His joyful giggle bringing the whole room to light up and laugh along with him. He asked if we could start out the night on the energy that Christine wanted. He asked us to think of a time we spent with Christine with a smile. Most people look up or down when asked to take a moment to remember, he said. But he wanted us to look straight. Look at people’s eyes and hearts because that is where she will always be.

There were 18 musicians on stage playing brass instruments, strings, drums and piano. We heard ballads, upbeat songs and even a funny tongue twister! It was a celebration like no other. Her husband, son and daughter all took the stage.  What was evident to all is that as talented as she was with a voice that could stop a room, she was always an amazing mom, wife, daughter, sister, aunt and friend.

Her daughter also had so many wonderful stories and funny memories to share. And at the end of it all, she said she wished she could have one more day with her. One last hug. One last dance, one last song, one last meal together. We cannot take life for granted. When you think you have it bad, someone else is dealing with something so much harder. Christine was a fighter. And through that, she was still helping others with her foundation Be Brave and Believe. Her motto was “Never Ever Ever Give Up!”

So hug your children tight tonight. Enjoy every moment of every day. Even the hard ones. You will get through it!

xo

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